Sunday, February 28, 2016

Good people get rewarded

One of the gals at work really went above and beyond while I was going through my cancer treatment. Good books, funny books, gifts, cards,  the whole gamut. So I made her this wreath in appreciation. Hope she likes it. She chose the colors sage, purple and yellow. I added the red because I found the perfect little sign for the middle of it and the sign had a red flower too.



She loved it and sent me a pic of it above her fireplace. I'm so glad.
 
 
 
I found the PERFECT place in our home for the wreath you made for me.  Beautiful there and the perfect size and scale!  And without measuring.  Amazing!!!
 
I am so grateful and humbled that you shared your talent with me.  It so makes me smile J !
 





Tuesday, January 5, 2016

Dr Phil Show

Evidently there were just too many words in this sentence that had the 'ie' or 'ei'  for them to get this right.....

Monday, November 30, 2015

Ask me if I care

One of the Jenners was on Ellen today. Kylie.



I just don't give a shit! << if I could get that font bigger I would!!

When is America going to realize that the majority of us out here just don't give a shit about the Kardashians or Jenners?

I fast forwarded it through the whole segment. Because I just don't give a shit!


I told myself when I was diagnosed with cancer that I was going to be kinder and easier on people.

Uh no.

In fact I can't tolerate the stupidity and idiots even less. LOL

Pretty sad that I haven't posted since August 29th and this is what got me to post again!


Saturday, August 29, 2015

Another weekend home

Still have that unwell feeling from the chemo. Which surprises me since I still have an appetite.
Today is the second day that my throat hurts. Feels like something is in it when I swallow. Not a bad pain so far.

Two weeks done and 5 to go. My next chemo is Sept 8th. Oh man I dread it. My kidney function is already jacked. 1.2 on the creatinine scale. Which is like just the beginning of bad. The next chemo round will probably jack it up to 3 or 4. When it gets to 5 or more then that's really bad. They already told me that this will affect my kidneys but they should come back.
I do have the ringing in my ears too. Mostly noticed when I am trying to sleep and it's quiet. Haven't lost any hair yet, I believe that will start day 14 (Monday) to day 21.

I take my laptop with me so I don't know why I am not posting everyday. I don't even turn it on.
I can only get one TV station where I am staying even with a high powered antenna so I subscribed to Netflix. I am hooked on Prison Break,  and Grace and Frankie with Lily Tomlin and Jane Fonda.

Foods starting to taste bad. It's not all the way there yet but it's getting there. Ensure still tastes okay. That's what I will live on starting this week and for a few months probably. I have to do neck muscle exercises so I don't lose my ability to swallow, especially if I get a PEG (stomach tube feeder). I don't mind having to get one but when it's time they just yank it out with no numbing or anything. THAT I DREAD!!!! Bah!!!

Today I am starting this:


Michael Symon's Italian Beef


I'm making Yia Yia's Sunday Sauce today and tomorrow I will make the final dish. Looks good, eh??

I just hope I can eat it! LOL!!!


Saturday, August 22, 2015

Home for the weekend

after my first week of treatments.

Chemo sucks but I made it through it with help from steroids and anti nausea meds. Haven't puked yet! LOL

The first three days aren't bad because they give this steroid in the IV that lasts three days, but day four I had the queasy come on a bit. Which was yesterday. Still have my appetite and am eating heartily. That'll change. I dread that second dose of chemo, it's gonna suck so bad!
I had a swallowing test on Thursday. Starting to get a little bit of dry mouth but only when I sleep and talk to people.

Chocolate doesn't taste too good. Tastes muddy. I also find a fine line between not enough salt and too much.
I am warm then chilly, off and on a lot.

The constant unwell feeling doesn't go away.

I have to drink lots of water to keep my kidneys functioning. It's hard to do when water makes me feel full and queasy bloaty.




Tuesday, August 11, 2015

Still here!

Chemo and radiation starts Monday. I'm looking at it like an adventure. A scary, sucky adventure! Ha!

Saturday, July 18, 2015

Long time!!

Since I've been here. I went into the hospital again on June 24th with infection in my mouth. Staph. Thankfully I caught it in time that it didn't get too far gone. I was out of the hospital in 4 days and have been packing the infection area since. Probably a good thing I never get sick because I haven't taken antibiotics for about 15 years, if not more. They had me on two kind of antibiotics through my IV. One was vancomycin, which is specifically for resistant staph infections. I was scared I tell ya. I thought for sure my flap (skin graft in my mouth) was failing. Then when I was told that wasn't happening I then started thinking they wouldn't be able to control the infection and the antibiotics would damage my kidneys etc. OMG

I'm back to work too. I feel tired halfway through the day but nothing major. I figure my radiation and chemo will start in a couple weeks. I had to have 3 teeth pulled so they are waiting for those to heal before I start. The teeth were pulled because radiation could have caused problems with them. If I ever have to have a tooth pulled in the future I am taking a chance I will lose my jawbones because jawbones don't heal after radiation and they get infected. Great. Another thing to worry about. I have to do fluoride treatments 3 times a day during radiation and  2 times a day for the rest of my life. I picked up my mouth trays Thursday. I will also have to go to my dentist every 3 or 4 months for the rest of my life.

I will get cisplatin as my chemo drug. I will get 100 units on day one of radiation, 100 units on day 22 of radiation and 100 units on the last day of radiation-day 43. I will have radiation 5 days a week for 6 1/2 weeks. They are giving me the largest dose of chemo they can. I may lose my hearing, I will have no muscle mass when I'm done, possible tingling or burning feeling in my hands and feet and possible kidney damage. I will be on a saline IV for two days after each chemo treatment to flush my kidneys. I was told that by the end of chemo I may not even be able to get up out of a chair. My white blood cell count will be exceedingly low too. Hey! The bright side is that cisplatin doesn't usually cause significant hair loss! I guess it will get thinner and I will also lose some from the radiation that will hit in the back of my head.

I just hope after all this I'm not told I only have a few months to live. My cancer is far more advanced than they had expected.