Saturday, July 18, 2015

Long time!!

Since I've been here. I went into the hospital again on June 24th with infection in my mouth. Staph. Thankfully I caught it in time that it didn't get too far gone. I was out of the hospital in 4 days and have been packing the infection area since. Probably a good thing I never get sick because I haven't taken antibiotics for about 15 years, if not more. They had me on two kind of antibiotics through my IV. One was vancomycin, which is specifically for resistant staph infections. I was scared I tell ya. I thought for sure my flap (skin graft in my mouth) was failing. Then when I was told that wasn't happening I then started thinking they wouldn't be able to control the infection and the antibiotics would damage my kidneys etc. OMG

I'm back to work too. I feel tired halfway through the day but nothing major. I figure my radiation and chemo will start in a couple weeks. I had to have 3 teeth pulled so they are waiting for those to heal before I start. The teeth were pulled because radiation could have caused problems with them. If I ever have to have a tooth pulled in the future I am taking a chance I will lose my jawbones because jawbones don't heal after radiation and they get infected. Great. Another thing to worry about. I have to do fluoride treatments 3 times a day during radiation and  2 times a day for the rest of my life. I picked up my mouth trays Thursday. I will also have to go to my dentist every 3 or 4 months for the rest of my life.

I will get cisplatin as my chemo drug. I will get 100 units on day one of radiation, 100 units on day 22 of radiation and 100 units on the last day of radiation-day 43. I will have radiation 5 days a week for 6 1/2 weeks. They are giving me the largest dose of chemo they can. I may lose my hearing, I will have no muscle mass when I'm done, possible tingling or burning feeling in my hands and feet and possible kidney damage. I will be on a saline IV for two days after each chemo treatment to flush my kidneys. I was told that by the end of chemo I may not even be able to get up out of a chair. My white blood cell count will be exceedingly low too. Hey! The bright side is that cisplatin doesn't usually cause significant hair loss! I guess it will get thinner and I will also lose some from the radiation that will hit in the back of my head.

I just hope after all this I'm not told I only have a few months to live. My cancer is far more advanced than they had expected.


Tuesday, June 16, 2015

The Surgery

was 12 hours long.
I never needed a tracheotomy because I breathed well on my own through the entire procedure.
When they wheeled me into the OR room I yelled out Hi People! to all the nurses and others in the room. I got a response back too! They hooked me up and then I was out.
I remember being woke up and wheeled down a hallway. As we passed another person on a gurney I asked them if they wanted to race. The male nurse pushing me laughed. I was just so glad to be alive and wanted to be funny, like usual. LOL
That started the trend that I was their star patient through the whole 7 days I was there. Everyone was so astounded how well I was doing, and how fast I healed. I think just being a happy person in general helped me a lot. Laughing is the best medicine. After animals, of course.



After informed consent was reviewed, the patient was brought back
to the main operating room and placed in asupine position.
General anesthesia was induced, and the patient was
nasotracheally intubated.  The tube was secured to the nasal
septum with a 2-0 silk suture.  The bed was turned 180 degrees
away from Anesthesia.  An arterial line and Foley were placed.
The intraoral cavity lesion was inspected and injected with 1%
lidocaine with 1:100,000 epinephrine for a total 7 mL.  The
planned right neck incision was marked approximately 2
fingerbreadths below the mandible in a natural skin crease and
injected with 10 mL 1% lidocaine with 1:100,000 epinephrine.  The
patient was then prepped and draped in sterile fashion for the
procedure.  A time out was performed.

A bite block was placed, and the oral cavity was inspected.  The
patient had an approximately 6 x 4 cm right buccal mucosa cancer
that appeared to extend into the gingival buccal sulci
bilaterally and encompass the parotid duct.  The tumor extended
anteriorly towards the oral commissure and posteriorly toward the
RMT.  The planned incisions were marked with monopolar cautery,
with approximately 1 cm margins. The resection extended to the
oral commissure, to include the red lip, with the white lip left
intact. The mucosa was incised with monopolar cautery.  The
buccinator was taken as the deep portion of the specimen.  The
specimen was released off the buccal fat pad.  The dissection was
carried more superficially, as we worked anteriorly toward the
oral commissure, releasing the specimen off the orbicularis
muscle. The specimen was released without coming through the
cheek skin.  The specimen was oriented and handed off to nursing
for permanent pathology.  Frozen section margins were taken
circumferentially from around the specimen for frozen section.  A
deep margin was taken from the buccal fat pad posteriorly as well
as along the deep muscle anteriorly.  The anterior mandibular
gingival margin came back positive for focal CIS.  A second
margin was taken from this area which also returned positive for
focal CIS.  Ultimately, a permanent section was sent from around
tooth #29, which was the only remaining mucosa in this region.
Hemostasis was achieved with bipolar cautery.

We then turned our attention to the right neck.  A 15 blade was
used to make an incision down through the skin and through the
platysma.  A subplatysmal flap was raised superiorly up to the
mandible.  The external jugular vein was preserved for use in
reconstruction.  The greater auricular nerve was also preserved.
The inferior subplatysmal flap was also raised.  The nerve
stimulator was used to identify the level of the marginal
mandibular nerve.  The fascia was divided using blunt dissection
inferior to the marginal mandibular nerve working superiorly
towards the mastoid tip.  The fascia was raised off the
submandibular gland, which was then carefully retracted
inferiorly.  The facial vein was identified and divided for use
in reconstruction.  The submandibular gland was dissected
bluntly.  The digastric muscle was identified and traced
posteriorly back towards the mastoid tip.  The facial artery was
identified and suture ligated.  There was a large nodal
conglomeration in level IB which was taken in conjunction with
the submandibular gland.  As this nodal mass was retracted
inferiorly with the submandibular gland, the mylohyoid muscle was
identified.  The mylohyoid was retracted superiorly.  The
submandibular duct was clipped.  The level 1B specimen was
released and handed off to nursing for permanent pathology.  An
additional perifacial node was dissected and handed off to
nursing for permanent pathology.

Monopolar cautery was used to release the fibrofatty contents
along the anterior belly of the digastric.  This was released
towards the contralateral anterior belly of the digastric.  The
specimen was released down to the level of the hyoid.  The level
of 1A was handed off to nursing for permanent pathology.  We then
turned our attention to dissection of an external jugular vein
node.  This was released and handed off to nursing for permanent
pathology.  The fascia was then released off the anterior border
of the SCM and unrolled medially.  The spinal accessory nerve was
identified and traced superiorly toward the IJV.  The fascia was
released off the SCM down to the level of the omohyoid.  The
floor of the neck was identified inferior to the spinal accessory
nerve.  The fascia was released along the floor, and the
fibrofatty contents were rolled from lateral to medial, working
toward the internal jugular vein.  The fibrofatty contents were
sharply dissected off the internal jugular vein.  The specimen
was then released off the omohyoid inferiorly.  The specimen was
divided into levels II-III and handed off to nursing for
permanent pathology.  Hemostasis was achieved in the neck.

A Dobbhoff was placed in the right side of the nose and secured
with 3-0 nylon.  The patient was then handed over to Dr.
Pagedar's team for reconstruction.


 

Following the ablative portion of the procedure, the
reconstructive portion of the procedure commenced.  The defect
was inspected, and found to require reconstruction with tissue
taken from the radial forearm based on the radial artery.   The
left arm was prepared for harvest.  Preoperative testing had
demonstrated intact collateral perfusion from the ulnar artery.
The radial artery and cephalic vein were marked. A skin paddle
measuring approximately 8 x 6 cm was drawn out centered over
these vessels.  The arm was exsanguinated, and a tourniquet was
applied and inflated to 250 mm/mercury.  Total tourniquet time
was 70 minutes. An incision was made outlining the cutaneous
paddle and carried into the subcutaneous tissue of the arm.  The
ulnar side of the flap was elevated off the flexor carpi radialis
muscle and tendon. The cephalic vein was identified proximal to
the skin paddle. Once the direction of the vein was confirmed,
the incision was extended superiorly towards the antecubital
fossa in a lazy "s" configuration, down to the level of the
cephalic.  The cephalic vein was then elevated with a vessel loop
and dissected in a circumferential fashion up to the antecubital
fossa. It was then followed distally to the wrist, carefully
dissecting from the radial nerve and keeping it attached to the
skin paddle. The cephalic vein was ligated distally. The lateral
paddle of the flap was raised off the brachioradialis muscle
towards the radial artery. Sensory branches of the radial nerve
were spared. Proximal to the skin paddle, the pedicle containing
the radial artery and venae commitantes was identified between
the bellies of the brachioradialis and FCR, the fascia between
the muscles was released and the pedicle traced proximally, with
ligation of perforation branches to the muscles. The pedicle was
then isolated and ligated distally and dissected proximally in a
suprafascial manner between the muscle bellies of the
brachioradialis and flexor carpi radialis muscles, with attention
to hemostasis and control of perforating vessels.  Dissection
proceeded until the communicating vessels at the elbow were
identified, and these were spared.  Once the flap was pedicled on
its nutrient vessels, the tourniquet was released.Hemostasis was
achieved in the arm and on the flap itself. The hand demonstrated
adequate perfusion. Subsequently, the radial artery, venae, and
cephalic vein were suture ligated and the free flap was passed
off the table to be prepared for inset.

The forearm wound was repaired in the following manner: A JP
drain was placed and the proximal incision, measuring 12 cm,  was
closed primarily in two layers with deep 3-0 vicryl and a running
4-0 nylon.  A split thickness skin graft measuring 8 x 8 cm was
harvested from the left thigh with a dermatome and sutured to the
forearm donor site defect with 5-0 fast gut in interrupted and
running fashion.  The thigh donor site was dressed with Allevyn
foam, secured with staples.  The skin graft was bolstered with
vaseline gauze and moist gauze.   The arm was wrapped with ABD
pads and webrill.  A volar splint was made with plaster sheets
and wrapped with an ace bandage.  Attention was paid to padding
the arm and hand at the pressure points.

Attention was turned to the oral cavitydefect.  The flap pedicle
was passed into the neck through a soft tissue tunnel created on
the lateral surface of the right mandible. Flap inset was then
performed;  the free flap skin was sutured to the mucosal edges
of the buccal defect using 3-0 Biosyn sutures in horizontal
mattress fashion. Circumdental sutures were placed where the
resection margins included the gingival mucosa. Portions of the
skin of the flap at the right oral commissure were brought out
and sutured to the skin of the white lip, where the resection
extended to this area. The complete mucosal and skin defect was
closed,  creating a water-tight seal separating the neck from the
oral cavity.

Anastomoses were then performed using the operating microscope.
The flap vessels and recipient vessels in the neck were dilated
and cleaned with microsurgical instruments and irrigated with
heparinzed saline.  2% lidocaine solution was applied directly to
the vasculature to counteract vasospasm.  An end-to-end arterial
anastomosis was performed from the radial artery to the right
facial artery using 8-0 nylon in an interrupted fashion.
End-to-end venous anastomosis was performed from the larger of
the two radial venae to a branch of the lingo-facial trunk on the
right; a 2.0 mm coupler was used (this vein was positioned deep
to the arterial anastomosis to maintain good geometry of the
pedicle). An additional end-to-end venous anastomosis was
performed from the cephalic vein to the external jugular vein
using a 3-0mm coupler. Upon removal of the vascular clamps,
excellent flow-through was noted in the vein, strong doppler
pulse in the perforating branch, and the skin of the flap was
noted to be well-perfused.

Hemostasis was confirmed. Two round JP drains were placed; one
deep to the right SCM, and the other in the submental region.
The 15cm neck incision was closed in 2 layers: the platysma was
closed in interrupted fashion with 3-0 vicryl.  The skin was
closed in running fashion with 4-0 nylon.  There were no
complications.




I was taken to ICU.  They put a bite block in my mouth.





What a hopeless feeling with one arm in a cast, the other hooked up to IVs and a blood pressure monitor, and tubes coming from all over. I was also catheterized. I had two tubes coming from my neck, one from my left top arm and one from my crotch. Couldn't feel the crotch one though, not that it would have mattered.
I also had a feeding tube down my right nostril and a clear long thing with a hole inserted into my other nostril. They gave me Percocet every 4 hours so the pain was manageable. The worst was that the things down my nose created THICK snot that traveled down behind my nose and mouth and then made me feel like I couldn't breathe because it would get over my airway. They had to suction out the snot, A LOT. Most times they couldn't see it but I could feel it between my nose and mouth behind my uvula and it was literally scaring me to death. The ICU nurse was amazing. She'd listen to me and by the end of the night I had her trained to go down my nose only about 2 -3 inches and suck out the snot there. I also snorted it into my mouth a few times and she sucked it out from there. They really didn't want me doing that because of the sutures inside my mouth. Once me and her had that down we were a team. But it took about 8 hours to get there and in the meantime I was panicky because of the mucus. I truly though I was going to smother to death for those 8 hours. That feeling never really went away until day 6. Because of that feeding tube the mucus was crazy, plus I wasn't taking any liquids by mouth and that added to the viscosity of the mucus. It was horrible. HORRIBLE. That first night was the worst though. I also got no sleep for about 5 days. They had to come in every hour for 48 hours and put this Dopple thing between my fingers and also inside my mouth to make sure that my hand was still getting blood flow and also that the new blood vein they had put in my cheek was still working. After the 48 hours, then it was every 4 hours, then every 8 etc. Just when I started falling asleep someone was coming in to dopple me or take my vitals, or push drugs down my feeding tube. etc. I got so exhausted that I couldn't sleep. Plus it hurt to sleep. I had to be in a 30 degree or more position so my head would loll to the side and since they removed nerves, tissue etc from my neck, it would make me feel like I didn't have any blood going to my brain and it HURT.  Once I woke up after being asleep less than 2 minutes and the room was yellow. I'm serious. It was like someone strangled me then released right before I passed out, Then I was afraid to sleep.

The next morning one of the doctors removed the clear plastic thing from my left nostril and that so eased the mucus and I could breathe better. He was my hero that day.

I will post more later under a different heading. The notes above from the doctors is available to me online. I thought it was interesting so assumed you would too.

I sent this pic to family and friends knowing someone would kick in a joke about the two fluid collectors on my boobs. I was not disappointed!!! LOL

Friday, June 12, 2015

I'm alive!

Can't type much because my arm they took the blood vessel and skin from is still wonky.

My first video back too. The clip is holding up the bottom of my dress so it doesn't touch the skin graft.

God I look so old too.

The cancer escaped the capsule in my nodes. Not good. I have a drs apt on Wednesday and Friday next week so I will learn more then. The first apt is with my surgeon and the other is with another cancer doctor it looks like.

OMG This is so daunting.

Posted later: here's what my arm looks like.

Tuesday, June 2, 2015

My last post before surgery

We have to be in Iowa City at  5:30 so we have to leave the house by 3:00 am. Which means I need to get up around 1:30 or 2:00am.

I just took 2 sleep aids and will try to get as much sleep as I can. I seem to be less worried than I had expected. That's surprising me. I'm trying not to think about it though.

My bestie and her husband will come down and let the dogs out. Depending on how stable I am, I am making Jeff go to work at least half days Thursday and Friday. His work is being good to him too so he needs to pay back if he can.

I'm getting lots of prayers from all over. It's really nice.
I need to go lay down to relax so I can fall asleep as soon as possible.

I hope I come back soon.

Saturday, May 30, 2015

New duck duck?

Jeff and I seem to agree that last night we had a completely different mallard land in our pool. Mike and Molly ALWAYS come and leave together and except for little duck garbles they make,  they don't talk a lot. Plus they had just left about 1/2 hour before the different one showed up. They don't do that --stay and then come back rather quickly after leaving. They show up once in the morning and stay a couple hours then show about 7PM and stay anywhere from 2 to 6 hours.
The one that showed up last night would not let me anywhere near him plus he kept quacking. Mike and Molly now let me as close as 4 inches from them. Jeff's the one that first said it was a different duck and I disagreed. Then as I watched him, I finally had to agree. He just acted different than Mike. I think he's out there now (it's 4:00 central time) because there isn't a female and he stays on the other side of the pool, away from me. I'm kind of assuming it's one of their offspring from either last year or this year---if they grow that fast?? I think they do since they have to fly south for the winter, so
they have to be adults by the end of summer, right? (not that I'm saying this is the end of summer or anything because that would be weird and really off-right?)??

Here they were doing a little water dance. I figured it was a mating thing. They've never done this before--diving. I just love these little duckies.


They did this for quite a long time too. At least 4 minutes or so. Cute.



Here's a video I just made. For posterity. It might seem the cancer is really small, but there's a benign tumor farther back and that is why the whole inside of my cheek will be taken out.
Here, I just videoed this:

 
It doesn't hurt nor interfere with anything, unless I open my mouth real wide, because then the top of the benign part gets stuck on my teeth. You can see how I had to move out my lower jaw to get it off the teeth. I'm not too optimistic that I won't need radiation, because that benign part just keeps spreading. I doubt they can get it all or get it to stop without radiation. I also think that since it's been 3 weeks since the CT scan, I WILL have it in my nodes, therefore I will need chemo too. I am going to be one sick puppy by the end of August. 


I have to admit. I'm kinda likin Martha Stewart. Have I made that proclamation before? I even watch her when she makes stuff I don't even wanna make! Now that's sad. LOL! Today I watched her episode where she makes a breakfast strata, oven baked French toast, pean and ham quiche and Dutch baby pancakes.
http://www.pbs.org/food/features/martha-bakes-breakfast-episode/
Okay, I watched just for the strata but OMG I am going to have to make those dutch baby pancakes too. SOMEDAY. I'm hoping I will be able to eat again at least by October. I know I will lose weight but the way I like food I will be a size 18 again in no time. LOL! Unless....my tastebuds and saliva glands suck, or it's hard to chew and swallow. That's going to KILL this Foodie I tell ya!
Food is one of life's greatest joys. I hope it's not totally destroyed for me. I hope, I hope, I hope.

I also hope I make it through surgery because I have a heart arrhythmia. There's so many things that can go wrong with this 5-7 hour surgery. I'll say it again. I'm so scared.




Friday, May 29, 2015

Doctor speak

I have discussed surgery with Lori in some detail. She also discussed surgery with Dr. Chang today. We described a transoral procedure for en bloc resection of the right buccal cancer including the oral commissure. She would have a right neck dissection. I discussed reconstruction with her, specifically a left-sided radial forearm free flap and split thickness skin graft to the arm donor site. We discussed the expected perioperative course, including the possible need for tracheotomy and the need for a nasogastric feeding tube. We discussed risks associated with reconstruction, as well as risks associated with neck dissection including weakness of the marginal mandibular nerve and the accessory nerve. We discussed the risks of trismus that the cavity buccal resection. We also discussed the possible need for scar revision both at the oral commissure as well as to reduce redundancy of the flap. We discussed the possibility of microstomia and medial displacement of the right oral commissure. She understood these issues and wished to proceed.


This is what happened today. ^^^ U of I give their patients access to everything happening to them. I love it!

Soooo, my inside right cheek will be replaced with the tissue and vein from my left forearm. A thin skin graft from one of my thighs will cover the forearm wound. My mouth will get smaller because he doesn't want to do a skin graft on my lip, so my lips will be asymmetrical. I may need plastic surgery down the line not only for my lip, but also the inside of my cheek. I may have loss of sensation in my mouth, lip and neck. I may have nerve damage also. They won't be replacing the muscle in my cheek (Yay) and they plan to take it (the inside of my cheek)  all out in one large chunk. Therefore they can check the margins for cancer. If the margins are clear, no radiation.
So basically I feel better than I did. I'm ready for this. I have a long road ahead of me as long as I make it through the surgery.

I will be in intensive care one night. In the hospital for at least 7 days, and out of work for at least a month. BAH!!
I will be posting videos of myself, when I can.


I will beat this. Because NO ONE...NO ONE messes with a woman in menopause!



Sunday, May 24, 2015

I believe I have a new favorite band......AND A NEW IPHONE6

My first fave band was ELO, then Crash Test Dummies then Blue October....now I think Kings of Leon has nudged Blue October off the edge....


I mean listen to this!!


And this!  (fickle is spelled wrong)

This!!

More!!





I had recently bought the Black Keyes CD El Camino and burned a disk for the jeep for Jeff so I could "turn him on to a new group." He said all the songs sounded a like. I kind of agree, but also know that after listening to an album many times you don't think that any more. But with Kings of Leon, NONE of their songs sound like another. Very diversified. I bought their album, The Collection Box. 5 cds and one video in one collection. Hellish. Just freaking hellish. Had to buy it on Ebay because I couldn't find it in town.



ENJOY.


There's more great songs by them, so be sure to check them out.

After having a flip phone for the last 4 years I finally got my own iphone!! I love it!! So user friendly and now I can text like a mad woman! I'm going to need that when I can't talk after surgery.